Organ Transplantation
Good stuff in general about organ transplantation:
A good site that contains information about common myths about transplantation, questions and answers, and description of the Transplant Games is the one by Transweb.
The United Network for Organ Sharing has recent news and archived policy news about transplantations, plus profiles of people who have had transplants, information about waiting lists and statistics about organ transplants performed, life expectancy, and much much more. It is a complex website, not easy to use, but as the official organization in charge of organ distribution policies in the U.S., it has an extraordinary amount of information.
The Multi-Organ Transplantation Service of the London (Canada) Health Science Centre also has information about commonly asked questions, including attitudes of religious organizations about transplantation, xenotransplantation, the need for more organ donors, and more.
The Coalition on Donation has a few statistics, dispels some myths, and talks about what people can do about the donor crisis.
For more information about organ donation, including frequently asked questions, see the Association of Organ Procurement Organizations.
The National Foundation for Transplantation helps raise money for individuals who need different kinds of transplants.
The Transplant Recipients International Organization has very up-to-date legislative information.
Good stuff about lung transplantation in particular or lung diseases:
Second Wind is a great organization for people who have had transplants or people who care about them. Its webpage has information about the road to transplantation, diseases, rehab, members' stories, memorials, etc.
NewLungs.com is an interesting site put together by someone who had a lung transplant and who wants to provide information for other patients and to honor organ donors.
*NEW* UStransplant.org provides a "Transplant Primer" with a description of the process of lung transplantation from evaluation through going home after surgery. There's also some links to statistics (such as life expectancy) for lung and other transplants.
*NEW* The University of Southern California's Lung Transplant Program has posted an amazing amount of information and advice for patients, covering topics including making the decision, getting evaluated, surgical procedures, finances, medications, nutrition and exercises, and getting the support one needs.
*NEW* Brigham and Women's Hospital answers some of the same frequently asked questions, a bit more concisely.
*NEW* Excerpts from interviews done by Elon students with people who were waiting for or had received lung transplants.
The American Lung Association provides statistics and other info about lung diseases.
Boomer Esiason has created a Cystic Fibrosis fundraising organization, and the site provides lots of information about CF. The Cystic Fibrosis Foundation contains some information about the disease, resources, research, and activities. The CF Kids Website is intended for kids and provides information but with constant advertising.
A good starting point regarding Pulmonary Hypertension is the PHA website.
To get basic info about pulmonary fibrosis, including idiopathic pulmonary fibrosis, plus some personal experiences of people who have it, follow the links at the bottom of the Pulmonary Fibrosis Organization page.
For medical information about alpha-1 antitrypsin disorder, start with the Alpha 1 Association site. For patient stories, follow the links to the Alpha Atlas.
A general description of COPD's causes and symptoms is available from the American Lung Association. You can also get a sense of what it's like to live with COPD day-to-day, in that organization's tips for COPD patients page. For some interesting patient stories, check out the "Living with COPD" site.